Category: Pain Patients

  • Pain Patients Express Hope Amid Revised Opioid Policies

    Pain Patients Express Hope Amid Revised Opioid Policies

    Some medical professionals are finally starting to understand that cutting pain patients off opioids abruptly causes more harm than good. 

    After years of having their access to opioids restricted, some chronic pain patients feel that they are finally being heard, as the medical community becomes more open to the idea that tapering opioids, especially after long-term use, needs to be done slowly and carefully. 

    In April, the FDA warned that cutting off patients’ opioids too quickly could be detrimental to their health. The organization went so far as to recognize that not being able to control pain could lead to suicide in chronic pain patients. The Centers for Disease Control and Prevention (CDC) made a similar change in policy. 

    Andrew Kolodny, who co-directs Brandeis University’s Opioid Policy Research Collaborative at the Heller School for Social Policy and Management, recently told OZY that it is “exceptionally cruel to abruptly withdraw a patient from opioids.”

    Many pain patients feel that the medical community and regulatory commissions are just now beginning to talk about that openly.

    Lelena, a woman who was given opioids to deal with pain from fibromyalgia, was dismissed from her pain clinic after testing positive for heroin, a result that was later proved to be a false positive. Despite that, she was not able to access pain medications and had to go through opioid withdrawal, in addition to coping with her pain. 

    Laura Mills, who works with Human Rights Watch, said that experiences like Lelena’s are unnecessary and discriminatory. 

    “We always emphasize that the risk for harm [from suddenly stopping opioid medication] is huge, given that an approximate 13 million Americans are still on opioids long-term,” she said. 

    That’s why people like Kate Nicholson, a civil rights attorney who previously worked at the U.S. Department of Justice, turned their attention to helping people with legitimate medical needs access opioid medications. Although Nicholson said that the government’s new, more nuanced approach is needed, she also feels that there is a lot of work still to be done. 

    “It was hard in some ways to get the CDC to change,” she said. “And in some ways, it was the easiest first step.”

    Still, many people who have seen the negative impacts of opioids feel that it is only natural for prescribers to be extra cautious. Kolodny pointed out that Lelena, like many people on opioids, should never have been given the pills in the first place. 

    “There’s no debate,” he said. “You don’t give opioids for fibromyalgia. It’s the fault of this campaign that encourages people to prescribe opioids, a highly addictive drug you become easily dependent on.”

    View the original article at thefix.com

  • Pain Patients Push Back On Unfair Opioid Restrictions

    Pain Patients Push Back On Unfair Opioid Restrictions

    Pain patients hope to bring attention to the issue during Don’t Punish Pain rallies held around the nation this week. 

    April Grove Doyle just wanted to fill her prescriptions when she walked into a Rite Aid pharmacy. What she encountered, instead, was a hostile pharmacy worker who shamed her about using pain pills. 

    Doyle, who has Stage IV cancer, left in tears. 

    “I’ve got fucking cancer. I have terminal fucking cancer,” she said in a video that she posted about the experience. “They make me feel like I’m a felon or something. It’s not right.”

    Doyle is one of many pain patients around the United States who feel that opioid restrictions have gone too far. The pharmacist she interacted with that day told her he couldn’t fill her prescription because he was afraid of being fined.

    Pain patients say that these overly strict regulations on the distribution of pain pills erodes their quality of life and can ultimately drive them toward suicide. 

    “Pain patients have been abused,” Michael Schatman, editor-in-chief of the Journal of Pain Research told Wired. “I believe that it’s genocide of people with chronic pain.”

    Pain patients hope to bring attention to the issue during Don’t Punish Pain rallies held around the nation this week. 

    Doyle pointed out that she uses pain pills less frequently than her doctor recommends, making a one-month prescription last for 2-3 months. However, sometimes the pain from her terminal illness is too much to handle without opioids, she said. 

    “I don’t really take it unless I absolutely need it,” she said. “When you have metastatic cancer in your bones you need it, because sometimes the pain is so much you can’t even function. I just want to function. I want to be able to work. I want to be able to sleep. I want to be able to do things with my child. I don’t want to hurt all the time.”

    This isn’t the first time that Doyle has had trouble filling her pain prescriptions, even when she’s submitting them alongside other medications like chemotherapy pills and anti-nausea pills. 

    “Every time I take my pain prescription there they give me the run around. There’s always some stupid excuse,” she said. “I’m not a criminal. I’m not a drug addict. I don’t even take them as much as my doctor tells me to take them. It’s not fair.”

    Suicides among people with chronic pain have been rising, and many people blame the tightened regulations around opioids that have made it difficult for people to manage their pain effectively. 

    “You are allowing them to go home and essentially suffer until they kill themselves,” Lauren DeLuca, founder of the Chronic Illness Advocacy & Awareness Group, told The Fix last year. 

    View the original article at thefix.com