Tag: debilitating seizures

  • Colorado Cannabis Bill Aims To Ease Restrictions For Parents

    Colorado Cannabis Bill Aims To Ease Restrictions For Parents

    Parens of children who depend on cannabis-based medications for epilepsy and other medical conditions are championing the new bill. 

    A Colorado bill aims to make it easier for parents of children enrolled in the state’s medical marijuana program to get the cannabis-based medications that their children need. 

    According to current state law, children in the medical marijuana program — who are often severely ill — can have only one primary medical marijuana caregiver who is permitted to pick up his or her cannabis medications, according to Westword.com.

    Having to choose just one parent who has this permission can be stressful for families like that of Christine and Matthew Cerrato, whose four-year-old son Ethan uses cannabis to treat epilepsy and other medical conditions. 

    Because their son in so young and medically fragile, the Cerratos need to travel 80 miles to secure his medication, which is not sold locally. This is complicated by the fact that Ethan is often in the hospital: He was there 11 times just last year. 

    “For the first year, I was the caregiver. But when we’d be at the hospital, I couldn’t just leave this small child, who is sick yet also very cognitively aware, with strangers. But on the other side, what else can I do, let him lapse in treatment? There is this really bizarre gap here,” said Christine. Matthew is Ethan’s primary medical marijuana caregiver, so only he can go to the dispensary. 

    “We’ve got other kids and have to take care of groceries and meals. Matt has the availability to go [to the dispensary], but if he’s sick or occupied, he still needs to go, even though I’m totally healthy and able-bodied to do this myself,” Christine said. She pointed out that although their family can manage, other parents find the situation even more complicated to navigate. 

    “But we’re still lucky: We’re part of this gap that is married, in the same home, and Matt’s not traveling for work. We’re able to manage it, but I’ve had friends in the cannabis community go through ugly divorces… . Whatever the parental situation might be, it just doesn’t make sense,” she said. 

    When Christine posted her frustrations on Facebook one night, State Representative Matt Gray answered. After learning more about the issue he introduced the bill to allow both parents to be medical marijuana caregivers. The measure will be considered this week, but Gray says he doesn’t anticipate any opposition. 

    “This is a common-sense idea. The idea that one parent can give their kid medicine and the other can’t is kind of ridiculous,” he said

    Christine hopes the strange law changes soon. 

    “We’re all busy. Both of us being able to make Ethan’s purchases just makes things run more smoothly,” she said. 

    View the original article at thefix.com

  • Parents Reunited With Son After Losing Custody For Treating Epilepsy With Marijuana

    Parents Reunited With Son After Losing Custody For Treating Epilepsy With Marijuana

    The teenager must undergo monthly drug tests and is not allowed to use the smokeable marijuana that helped his ailments. 

    After treating their chronically ill son’s debilitating seizures with smokeable marijuana, Matthew and Suzeanna Brill lost custody of 15-year-old David for more than a month and faced criminal charges as well as a possible prison sentence.

    But as High Times reported, the Georgia couple has been reunited with their son with help from the American Civil Liberties Union (ACLU). The organization appealed to the Twiggs County Juvenile Court in support of the family and their son’s health issues; in response, the court issued a 12-month protective order, which allows the family to stay together, and may ultimately lead to dismissal of the criminal charges against the Brills.

    David Brill suffers from constant and severe epileptic seizures that, according to the Brills, did not respond to the marijuana extract cannabidiol (CBD) oil, which has been suggested by some clinical trials as an effective treatment for such a condition.

    Concerned for their son’s health, the Brills gave him smokeable marijuana—possession of which is considered a misdemeanor in the state of Georgia—which, they claimed, allowed him to live without seizures for nearly three months.

    The Brills said that they never forced David to smoke marijuana, and informed their doctors, a therapist and the police about their decision. 

    A visit from the police led to David’s removal from his family’s home by Georgia’s Division of Family and Children’s Services (DFCS) for more than 30 days, during which his seizures returned, while the Brills spent six days in jail on reckless conduct charges. Upon their release, the Brills launched a GoFundMe campaign to offset the cost of a lawyer to advocate for David’s return and their pending charges.

    But in late June 2018, the Georgia branch of the ACLU stepped in to file an amicus brief to reunite David with his parents, which argued that the Brills’ use of marijuana was done only to provide relief for their son and in a manner supported, albeit indirectly, by the Georgia Legislature, which allows the possession and use of 20 fluid ounces of low THC oil for specific medical conditions, including seizure disorders.

    In response to the ACLU’s efforts, the Twiggs County Juvenile Court issued a 12-month protective order, which reunited David with his parents on condition that the family checks in twice a month with the DFCS and provides them with his medical records.

    David must also undergo monthly drug tests, but will be allowed to continue to take cannabidiol along with other epilepsy medication to treat his seizures.

    If David does not test positive for THC and his parents cooperate with the DFCS, the juvenile court can terminate the protective order and dismiss the charges against Matthew and Suzeanna Brill. A review is scheduled for December 13, 2018.

    View the original article at thefix.com